“And some people around you only make things worse”….. How TRUE this statement is.. I know when I am at my WORST I try to stay to MYSELF since I could GO OFF at any given moment and I really DON’T want to HURT SOMEONE’S FEELINGS…(I HAVE CONTROL)most of the TIME…. BUT when the PAIN you have is so INTENSE ALL RULES go OUT the DOOR and no matter how HARD you TRY to keep your KOOL you’ve done LOST IT…WE all should KNOW by NOW how PAIN DIFFERS from one PERSON to ANOTHER even WITH the SAME MEDICATIONS..Some people just DON’T GET IT!!! .. that NO good for NOTHING scale they use you know the one with the SMILE face on it.. YEAH WELL Sometimes when I hurt I can still PUT ON that fake azz SMILE ( I am good at that) & I’m sure others are just as good at it too…At times..I/WE/US.. have to be…
But other times if one could really hear the SCREAMS that are going on in my HEAD and how ALONE I feel PHYSICALLY,MENTALLY it EFFECTS the WHOLE BODY and know that I am doing EVERYTHING to FIGHT BACK the TEARS and knowing I would LIKE to BREAK things or BANG my HEAD AGAINST a BRICK WALL !!!… I sometimes JUST CRY in the shower that way no one can tell (being wet) or when I wash my face in the morning/night OH I just got SOAP in my eyes…. I’m LUCKY to have a SUPPORT system like I have…MANY DON’T….. I CAN CRY,SCREAM,SHOUT and just be QUITE if I NEED…..THEY are here for ME….
I remember when SO CALLED FAMILY would ask how I was doing(THEY NEVER CALLED ME or ASKED ME..THEY would ASK my MOM) HOW NICE HUH??!!. WE are HAPPY to HAVE THEM ALL OUT of OUR LIFE!!!…..If ANYONE TELLS ME that EVERYTHING is OK or it’s NOT THAT BAD and it will PASS or it’s ALL IN YOUR HEAD that you can’t BE that SICK and in PAIN ALL THE TIME or well you TAKE pain MEDICATION that should be ENOUGH!!..( I WILL BASH HEADS TOGETHER!!!!)…I GET this ALL the TIME from IGNORANT/CLUELESS HEARTLESS/MOTHERFUCKERS >>>> I know IF I TOOK what YOUR taking I WOULD be KNOCKED OUT and PASSED out IN BED… So YOUR SITTING here so it must NOT be THAT BAD….I/WE/US>>> NEED to GET RID of the NEGATIVE ONES IN OUR LIFE!!..THEY are the ONES that MAKE things WORSE..THEY wear ROSE COLORED SUNGLASSES so that EVERYTHING THEY SEE is FINE (IN the WORLD THEY LIVE IN)and try to put FORTH LIES about OUR LIFE SAYING I’m NOT ILL..or WE are NOT ILL…..I/WE/US NEED to GET RID OF these NARROW minded PEOPLE…Ones like these ARE NOT worth HAVING IN and AROUND US..I have LEARNED that these PEOPLE and MANY others are almost the LEAST EDUCATED/BIG AZZ DUMB FUCKERS(or in short what I call them( DFers) when it comes to INVISIBLE CHRONIC ILLNESSES but THEY THINK that THEY are the MOST EDUCATED …What BREAKS MY HEART is that YOU tell them what all YOU have and all THEY say is OH (SHOWING THEY DON’T CARE) told MANY to LOOK it UP on the INTERNET!!..And I get I will LATER) I know THIS NEVER happens SINCE when WE would see or THEY call mom THEY would ASK HER>>>WHATS wrong with SUZETTE HOW CAN SHE STILL BE ILL>>like a FUCKING RECORD PLAYER…if THEY TAKE the TIME to LOOK up the INFORMATION that was told in the first place THEY WOULD KNOW..
IGNORANCE IS NOT BLISS……….
I/WE/US>>> CAN’T JUDGE one persons chronic PAIN level with ANOTHER persons chronic pain level or PAIN in general EVERYONE FEELS PAIN DIFFERENTLY as well as others RESPOND DIFFERENT to it. What WORKS for ONE person may NOT work FOR the OTHER or as well as the other but SAME MEDICATION again everyone response differently to pain and medications given out…..
So with all these INVISIBLE CHRONIC ILLNESSES out in OUR world TRY hard NOT to JUDGE ..when you THINK you see a PERFECTLY fine person getting OUT of the CAR that is PARKED in the HANDICAPPED space JUST try to REMEMBER they ALSO maybe SUFFERING in SILENCE……LIKE… I….WE…US…
ALSO:…. I/WE/US>>> have ENOUGH NEGATIVE PEOPLE and THINGS that go ON IN OUR LIFE ..LETS BRING IN MORE POSITIVE and LEAVE the NEGATIVE GARBAGE for TRASH DAY..
We all know this all to well
Just because one works for you won’t mean that I will get the same relief
I wanted to put a blog post up to let you all know that I’m soooo thankful for each and everyone “my followers” 🙂 for still being here since my health problems went fucking crazy!!!!!..
I tried to read post and comment on ones that caught my eye while I was out of bed but since I was not out of bed very long let me just say I am sure that I missed so much… I wanted to show everyone that I was still here and nothing was wrong when in fact that I could hardly stay at the computer long enough to pay bills…I was a mess… I’VE been dealing with my fibro/lupus flares,anxiety and severe pain along with the darkness of depression….yeah I was no good or use to anyone…I failed on those test my illnesses were stronger (this time) 😉
So with that said I noticed one day while looking around here that I had missed so many comments and it bothers me!… so as you can probably tell that I’m doing a bit better so I want to take the time and get back to these old comments that you all took the time out of your day to write to me I want to get back to you all I feel in order to grow and continue that I have to do this first and again it is only fair and I want to read them as well…so every comment will have a reply…. I have seen blog post where people would ask questions in the comment section or even the blogger would ask questions to followers and to my surprise the blogger would never answer the comments that ones ask…I guess some are just like that? But that my friend is not me at all….the whole idea of getting feedback good or bad or a comment and interactions that is what i want and hope to get…
So off to my comment section now then eat a nice homemade dinner that all 3 of us helped with and go from there….
I do have yet another doctors appointment in Dallas tomorrow maybe two of them if they can work me in…. One is pain management the other one is my Lupus and arthritis Dr ………..LET US HOPE FOR GOOD NEWS…I KNOW I SURE COULD USE SOME THESE DAYS….IT HAS BEEN ROUGH!!!…..But I shall fill you all in on the good and the bad…even if you do not want to hear it haha….
So any advice on ways that have help you work thru fibro/lupus flares and chronic pain? and lets not forget the damn anxiety it was so bad that I could not focus on one single task and seemed as if I was living on my Xanax with no luck at all… I mean it is to the point that I’m not living my life at all just going thru the emotions….what do you do in these times? oh I can not leave out depression that fucker…..
hope to hear back from everyone and again I will return soon as I get back into my routine by that i mean rest from doctors office and the damn drive……