May is Lupus Awareness Month

imageslupusI believe this is great information… but I feel like it’s cold and just touching the surface… Wanted to share anyways… I did not write this I just wanted to share as this Lupus kicks my unhappy azz everyday…..I still look forward to each day in hope that tomorrow will be better…As always I hang in there the best I know how…Also I have the organ threatening lupus ..Anyways I hope this can shed some light to a caregiver or a loved one or just anyone…

 

http://www.lupus.org/action/lupus-awareness-month-facts

Lupus Awareness Month Facts

Lupus Awareness Month is observed during May to increase public understanding of this cruel and mysterious disease that ravages different part of the body. Spread the word and share these facts on your Facebook and Twitter.

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May 1. Lupus is an unpredictable, chronic autoimmune disease that ravages different parts of the body.

May 2. In lupus, something goes wrong with the immune system, the part of the body that fights off viruses, bacteria, and germs. The result is the production of autoantibodies that cause inflammation.

May 3. Ninety percent of the people who develop lupus are women, though men can also develop lupus and their disease can affect some organs more severely.

May 4. Most often, lupus develops between ages 15 and 44.  However, between 10 and 20 percent of cases develop during childhood and these cases can evolve into serious health complications more rapidly.

May 5. African Americans, Hispanics/Latinos, Asians and Pacific Islanders, and Native Americans are diagnosed with lupus two or three times more frequently than Caucasians; however, lupus affects people of all races and ethnicities.

May 6. Lupus is not contagious and cannot be “given” to another person.

May 7. To make a lupus diagnosis, doctors evaluate a patient’s current symptoms, lab test results, personal medical history and family medical history.

May 8. Lupus can affect any organ system of the body, including the heart, kidneys, lungs, blood, joints and skin.

May 9. The malar, or “butterfly” rash on the face is present in an estimated one-third of people with lupus. This flat, reddish rash across the bridge of the nose and cheeks often is the only outward symptom of lupus (though other signs and symptoms might be present).

May 10. Though all pregnancies of women with lupus are considered “high risk”, advancing technology and a better understanding of the disease have improved pregnancy outcomes. Today, 80 percent of women with lupus symptoms that are not active can have successful pregnancies.

May 11. Lupus is not a form of arthritis, but many people with lupus do suffer from joint and/or muscle pain

May 12. Among people with lupus that affects the skin, poor mental health is common and has been found to be similar or worse than mental health among those with type 2 diabetes, recent heart attack, heart failure and high blood pressure.

May 13. People with lupus have two times the risk of developing cardiovascular disease than do people without lupus.

May 14. Nearly 3 in 4 people with lupus surveyed (76 percent) said fatigue limits their ability to participate in social activities.

May 15. An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

May 16. Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.

May 17. Many symptoms of lupus imitate those of other illnesses, and can come and go over time, making diagnosis difficult.
Week 4

May 18. Based on a recent study, it takes an average of six years for people with lupus to be diagnosed from the time they first notice their lupus symptoms.

May 19. A majority of people with lupus surveyed (63 percent) report being incorrectly diagnosed. Of those reporting an incorrect diagnosis, more than half of them (55 percent) report seeing four or more different health care providers for their lupus symptoms before being accurately diagnosed.

May 20. First degree relatives of people with lupus (parent, sibling or child) have six times the risk of developing the disease.

May 21. Sensitivity to ultraviolet light (present in both sunlight and artificial light) affects as many as two thirds of individuals with lupus, and may cause fever, debilitating fatigue, joint pain, rashes and other symptoms.

May 22. Of the 23 percent of people with lupus who experience severe lupus flares, all or most of the time over the last three months, 40 percent were admitted to the hospital at least once during the past 12 months, with an average stay of 10.5 days.

May 23. 40 percent of adults with lupus and as many as 66% of all children with lupus will develop kidney complications.

May 24. Almost three-quarters (74 percent) of caregivers report that caring for someone with lupus has an impact on their work productivity.

May 25. More than half (55 percent) of people with lupus surveyed whose work is affected are working part-time, intermittently or are unemployed because of lupus.

May 26. People with lupus usually are encouraged to engage in appropriate daily exercise to maintain muscle and bone strength, but they also need to balance exercise with rest.

May 27. On average, the annual cost of lupus, including expenses related to treatment and loss of productivity, exceed $20,000, and can increase to $63,000 if the kidneys are involved.

May 28. People with lupus take on average nearly eight prescription medications to manage all of their medical conditions including lupus.

May 29.  About half of all people with lupus will experience a serious infection during the course of their disease.

May 30. As many as 60 percent of people with lupus will experience some type of memory problem, such as recalling names, dates and appointments or balancing a checkbook.

May 31. With current methods of therapy, 80 to 90 percent of people with non-organ threatening lupus can look forward to having the same lifespan as people without lupus.  (I also have this one…)

Again I did not write this…

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19 thoughts on “May is Lupus Awareness Month”

  1. Just at first glance life is a daily challenge
    But when you add a disease it becomes
    Everything that is small becomes gigantic
    And
    What I am trying to say is that you become grateful for what ever comes to you in the way of pleasure
    A smile from someone who shows compassion where you didn’t accept
    It
    There’s always an up side
    That’s what I’m learning
    As always Sheldon

    Liked by 3 people

    1. OMG!!!! you hit the nail on the head…
      I agree with you 1000% life is a daily challenge in it’s self and then you add a health problem and just keeps building to that pile …
      Oh my dear one Sheldon I have become grateful for everything the lil smiles kids laughing a smell of a flower…sometimes it’s the little things that get me through a rough day a simple hey how are you…
      You reminded me of a time I was so sick in the hospital throwing up everywhere and I was in the elevator and out of blue a lady that I didn’t know put her hand on my shoulder as I looked up at her and mouth the words thank you she just smiled and to this day I still remember her face and the touch made me feel like all is going to be all right…the upside..yes..that was…
      Thank you so much for this… Really needed it and I felt it..you are such a great person and I am happy to have the chance to talk to you on here and read your amazing post..You my friend are something special…again thank you Sheldon
      Huggggs
      Suzette….

      Liked by 2 people

    1. Hello my friend… : )
      It is for so many and no cure..I just do not understand with all these studies going on with different diseases that I have and so many others that should be a cure by now..I have a lot of illnesses and injuries but I always remember so many are worse off than me….
      Thank you for your kind words and here is to getting to know you more
      Huggs
      Suzette

      Liked by 2 people

      1. Hello Suzette, I don’t understand either 😦
        I’ve severe nerve and inflammatory pain from an injury nine years ago. I can hardly walk and need a scooter. I found crafting and sewing very good therapy or I believe I would have had a breakdown. And now I have rediscovered my love of writing. I’m surprised and happy to connect with others on WordPress – it means a lot.
        Thank you for your welcome, I look forward to getting to know you too.
        Wishing you the best
        🐻 💙 🌞 Faith xo

        Liked by 1 person

      2. HI!!!!!!!! : )
        omg you poor thing I feel for you ..my
        heart goes out to you…
        omg wow great minds think alike..Once I get my desk and life organized (and my me time) I have been wanting to start crochet (sp) you know with a knitting hook like a j and a roll of yarn lol I started a blanket a long time ago and haven’t touched it in so long since I have no time…I also like to do cross stitch but haven’ done that in 20 years lol.. I have a craft bag at home that has some of my stuff in it.. but I have my knitting here I think that would help me relax and maybe take my mind off of the freaking pain…See you just made me remember that I had that here at dad home….THANK YOU!!!..I just have to like I said above get some organizing and my time done …It’s great that you do crafts from what you said it saved you.. my better half his parents are both dead I used to do the flowers for their site for every season and holiday I loved doing that..but so much has happened like mom passing and dad had an accident and now a triple bypass and just not himself so I am taking care of him for the last 6 years since mom died and I took care of her..when I am disabled lol… we make it work don’t we..
        I really appreciate you and your time and giving me the outlook of knitting again and my crafts…all to come…
        I am so happy as you are to connect with others on WP I am glad we connected as well..I really feel like these are friends to me as I hope that I am to them…They have all really helped me…
        You are most welcome and Thank you I also look forward to getting to know more about you always feel free to visit and at least say hey lol..
        Hope you have a wonderful Saturday and Sunday…
        Hugggs
        Suzette : )

        Liked by 1 person

      3. The knitting, crochet and x stitch sound good 🙂 . Maybe we can inspire one another? I miss sewing regularly in a group.

        I’ll write more soon my friend, as I’m sleepy (it’s after four in England).

        You take good care of you 🙂
        🐻 💜 🌼

        Liked by 1 person

      4. : )
        This sounds like a great plan : ) It
        would keep us inspired!!!… Also give each other ideas and maybe you could help me since it has been many, many moons since I have done anything lack of time and all I have to blame is myself when it comes to unorganized desk and paper work and papers oh and folders for bills for each family member lol and taking care of my dad and going to his appointments and not making mine..what a mess huh lmao….oh and still at his home for the last 6 years but, BUTTTT things are changing and it will be a good change so I will have time…I will make time..I will get all this taken care of very soon…Oh I do want to finish this little blanket that goes on the foot of the bed before I start anything more lol…See you reminded me of that so thank you …all my crafts are at home and most I lost to an aazzhole when I left him… My next type of project (at this state of mind) would be making a Lupus (purple) blanket and incorporate butterflies on it ..I don’t know if I would have to sew them on or what ? heck I don’t even have the yarn for it yet or butterflies lol just an idea I had that way when I go to the Dr I can wrap up in that even in the summer so I stay covered instead of a jacket..or what have you maybe make more than one lololol….you have my brain thinking now..and I thank you for that…So this sounds like a great plan!!!!…
        Well my friend I hope that you slept well and hope to speak to you soon…I will do my best to take care and you do the same thing my friend…thank you again for the ideas…
        What ideas do you have or are working on??
        k
        Hugggggs
        Suzette

        Liked by 1 person

      5. Hi Suzette 🙂
        I love the idea of your Lupus blanket, that is purple and has butterflies on, which you can take to your summer appointments 😀
        Oh you’re a good daughter taking such good care of your dad. I hope you’re not neglecting yourself too much though…because you’re important too.
        Sorry to hear about the a-hole 😦
        There’s a lot of them about. I’ve known a few. They steal our good energy because they’re too broken and selfish. I’m happy for you that you left. I hope you make your blanket my friend.
        I know nothing of crochet or knitting tho’ I admire it. Can you make the butterflies 3D so they stand free, like stumpwork embroidery? I really hope you do this for you because you’re worth it 🙂 💟💕
        You inspire me – thank you! – I would like to share some of my needlework with you. I’ll upload some photos to share.
        For now I’m focusing on my essay (English history, the arts), then I’d like to make something for our Johnna (painkills2).
        I’m a bit peed-off again I’m ill with another virus (this time via Mum who doesn’t eat properly and is run-down). I’m not even sure if I’m over the last virus caught from Fiance (who couldn’t be bothered to wear enough clothing!), three months ago. My immune system is poorly because of the long-term pain. A simple cold for someone else is always something more serious for me.
        You take good care of you 🙂
        HUGS!! 🐻 🌼 💛 🐝
        Faith xoxox

        Liked by 1 person

    1. Thank you my friend… : ) Just trying to put the information out so others can learn more about chronic illnesses …Things I
      live with everyday along with to many others…..
      Huggs
      Suzette
      Visit anytime …. I enjoy your bog as well…

      Liked by 1 person

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