Posts about Fibromyalgia

Insomnia+Fibromyalgia- You so mean I hate you!!

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well hello Insomnia why yes I am still up and awake… You do know that I have a full day in town tomorrow the Dr wants some test on my neck done things like MRI,CT you know fun shitt…Dad has blood work to be done as well we have to stop over to his Dr office for a minute then we have to go to the bank make some bills out before we leave and drop them off and um my desk looks like a damn Texas Tornado hit it ….NO JOKE!!!

Since my Fibromyalgia started to peak its ugly mean azz head out I have not been able to do much in keeping things organized like my desk things like that so things have been put on hold as it got worse …I knew it was coming but I was still trying to get things done but with brain fog and shitt it just was not going to happen today Shitt I already feel like calling the MRI place and make it for another day but you all know with chronic illnesses you are not sure when you will feel up to doing something and I really need to get dad his blood work and bank and blah,blah lol….

I have taken my bedtime medication like a good girl um that first dose was around 9pm and I laid in bed and just laying down caused pain I did try for longer than I could really stand hell my feet were going back and forth since I was agitated so I got up out of bed..around 11pm I took my last dose of sleeping medication (I start with the lowest dose first) and well again here I am AWAKE!!!..WOOHOO!!!..Even the pain from my pj’s cause discomfort I am thinking about taking a low dose of Prednesone (I know I spelled that wrong)( aka the bitch pill)also that will keep you up as well.. but fuck at this point I do not care the pain in my back is killing me since I have been up so long I am about ready to take a half of a pain pill but usually never have one after 4ish or 5ish pm every once in a while laying down helps with the pain of that but looks like that is not an option now does it lol..

So here I am still awake thinking about starting my day .. Make some coffeeee (I wish coffee gave me energy) then take a shower and with that brings more pain at times since the water hitting my skin hurts but at least I would not have to do it tomorrow and I could get most of my hair dry lol so I could undo my hair and I wanted to play with my makeup so I thought about wearing some for the day out but would not put that one till around 10:00am or so (I like no look makeup on myself) it differs with the plans of course and I do not wear makeup everyday at all… I could make some noise and make out a few checks that have to be drop off and paid tomorrow and make some deposit slips and things like that ( I believe and hope that I still have a desk somewhere under all this mess) SO NOT ME…everything has a place so this bothers me to no end…

We may get home by 5pm I have to be at my appointment at 1pm and I told the guys that I would cut their hair when we got back home and with my fibro and pain and no sleep oohhh hell I think it just might be a day from hell and I DO NOT WANT TO COME HOME AND LAY DOWN AND SCREW MY SYSTEM UP EVEN MORE!!!!…..We all know how one feels when they have not slept in many hours “loopy” and yuck I do not want to be that way….

Well it is 5:10AM…. and my pain level is a hard 10 : (  I think that I will start the coffeeeee and take my morning medications and take a shower or bath..nah shower this time …

What helps you sleep when you have nights like this? or weeks like this?? and relief from spasm all on my back ?  Any advice anyone? Insomnia,Fibromyalgia and lupus and chronic pain all the invisible illnesses … The ones people look you in the eye and can not see the rough shape that one is in or tell the fake smile from a real smile from you..the silent disease that makes us scream at the top of our lungs but only to be heard in our own brains……

4/11/16

11 thoughts on “Insomnia+Fibromyalgia- You so mean I hate you!!”

  1. I was recently talking to this dude who takes Pamelor (an antidepressant) for nerve pain in his feet, and he said it works pretty good. Other than that, there’s types of breathing methods for help in falling asleep. Filling my lugs with as much air as they can hold… and then sucking in even more… and then letting it all out… slowly but surely. I leave music on, but that doesn’t work for everyone. And I have a little bit of fragrance oil next to my bed, which I try to concentrate on, but that doesn’t work very well either. (Still, it smells good.) 🙂

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    1. I know this drug but under the other name noratriptline how ever you spell it..I was on that oh many moons ago for sleep like in 1997 maybe I can not remember why I had to go off it..hmm..I will have to try to do the breathing I can do it when I try to clam down sometimes it works others it don’t lol ..
      I used to leave musik on all the time I may have to find an app for that lol I used to love listening to musik as I fall asleep or the shows like dr drew or Delilah at night lol..or even musik on my computer or cd’s that I have hundreds ok maybe more lol…
      OMG I did some shopping and bought some of my favorite lotions (when they had a huge sale and kept sending me coupons ) lol I have the energy lotion and stress lotion in small bottles and a big stress on my desk here.. I also bought for sleeping the bath gel and lotion the lotion I keep at bedside and put it everywhere lol and put the sleep mask on that I got with a huge package deal from benefits makeup … and omg yes this smells so good as well I do have a pillow spray too but almost out and they do not carry it any longer so that fucking sucks azz…Like I said I buy makeup or lotions when I get a good deal I have pictures just have not posted on IG just yet so if you see it do not think this gurl has money with all that is in the pictures I got deals and some on HSN so I can pay lil each month lololol…I am cheap or thrifty yeah I like thrifty better than cheap…But with the make up I love it the natural look on me but I do not wear it everyday at all.. so it will last me ohh years or life time lol.. I am just me either you love me the way I look natural no make up most of the time lol or not..
      Do you like bathandbodyworks lotions or body sprays?????????
      But back to your help I thank you so much Oh also I think that medication would work great for the pain he has in his hands from his truck running him over and pinned him on his stomach face down with the tired on his hand out by himself dying…that is what the start of me taking care of him and my life to a stop but it will work out..but reading on that medication I thought of him so I will ask his Dr about it since he was in real bad shape this am pain wise in hands …
      again thank you for this information I love the lotions that help you or the oils you know it is more natural…
      OK one last thing too is I have these 2 different like bubble baths that of course goes in the bath that help with pain and relaxing I thought I told you about them and the name but I might not have..I will find them and give you the name and what one works best.. they are cheap like 3.00 or 5.00 a bottle at walgreens or cvs or I am sure GOD has it GOD aka Walmart lol the hell store..hate that place have not been in 14 years or so…lol..
      Ok gurl let me know how you feeling and I am catching up woohoo..
      as always I LOVE your advice and cherish it and you….

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  2. Man, I wish I had some good advice for you. My husband takes 5-10mg of melatonin when he has difficulty sleeping and it seems to work for him. Me? Sometimes Trazodone works, and sometimes it doesn’t. Taking Tramadol before bed for pain, and listening to relaxing music sorta helps, but the only sure way to get a good night’s sleep is to go a few days without sleep. I can’t recommend that one ;). Insomnia sucks.

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  3. I have actually given up on having a regular schedule. Between all my varied diagnoses I seem to sleep a couple of hours, wake in pain or coughing, have some medication and food, be up for two or three hours and repeat. It doesn’t make planning anything easy but I can only eat so much and sleep so much at a time.

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    1. I hear ya gurl..
      at times me too..If I am up I am up and when I sleep I sleep the only thing is it’s hard here at dad home since he likes sleeping in his chair in the living room so it’s not like I can find something to useful to do like straighten up things or try to clean ..I usually stay in my room and turn on the computer and do paper work or things that are quite lol..
      Omg yes I do not plan a damn thing lol there is no way that I can at all…
      Sounds like what I just went through to be honest .. I was just like you up for a few hours then back to bed..It seemed like it lasted almost a year..You can ask anyone this is the most that I have been able to be on WP..the only time that I would have to stay up is when I had to go to the Dr and then I would be wiped out for days …Heck I wouldn’t even take any medications after noon..I was just to tried to take them since that would mean I would have to get up unless I put them on my night stand even then I would just say fuck it and not take my evening and bedtime dose…So I can so relate to this.. I hope soon you get to feeling a lil bit better day by day …And wish they would really find a cure for all these chronic illnesses …..
      Let me know how you are doing ..I am here for you sunshine…
      Soft hugggs to you
      Suzette..
      keep in up to date please….

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      2. Well that means a lot to me you saying that…and I will take you up on that offer when needed as you do the same since I am sure that we will see a lot of each other late at night on here lol…. where about do you live so I know the time difference if any…I am in Texas…
        Off to read your post and thank you again for reaching out…and the hugggs..

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      4. kool that is not to bad lol.. I used to live in Vermont and go up to Canada for butter ..You all have the best butter omg… I remember family going just for that lol…

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      5. LOL, when our dollar was better I remember going across the border to Bellingham, WA, and getting butter as well as other things. It was cheaper, but more important I loved the sweet cream butter we couldn’t get here! That is so funny!

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